Here I am again, reading and commenting on the sixth post from Rat in the Walls, the blog I wrote during the final year of my brother’s battle with ALS. The post is titled “Empathic Alchemy,” and you can read it below the video.
Title: Empathic Alchemy
Blood is sometimes thicker than gold.
Posted in Caregiving, Video, Writing
Tagged ALS, caregiving, changing yourself, empathy, enduring, fatal illness, rat in the walls, sibling relationship, understanding, writing
Here’s the fifth Rat in the Walls post that I wrote about my brother’s battle with ALS. The post is titled “Gravity on Jupiter.” You can read the text of the post below the video.
Title: Gravity on Jupiter
Sisyphus had it easy.
He had control of his muscles. And he only had to push his rock uphill on Earth.
People with ALS don’t have that. It’s like Jupiterean gravity is squashing them flat.
Their rocks aren’t moving anywhere, up or down the gravity well.
Long time, no posts, because June disappeared in a fog of caregiving for my Mom and Dad. Now that it’s July, it’s time for another reading from Rat in the Walls, where I blogged about my brother’s battle with ALS during the last year of his life. The actual post (from April 1, 2007), is printed below the video.
Paranoia runs deep. But it doesn’t run well.
It gimps along, lurching from side to side, like Frankenstein’s monster.
Jaundiced skin. Beautiful eyes.